Find the Cause!

One of my major frustrations with doctors while being treated for infertility was the very common practice of just treating the symptoms and not the cause(s). If you go to your GYN one year after trying, you will most likely get a 21 day progesterone bloodwork (maybe a thyroid and prolactin) and a semen analysis for your hubby along with a prescription for clomid. Go have fun! No monitoring with ultrasounds, no real concern for what is causing the ovulation problems...just here is your clomid candy. When that doesn't work (it does work for some people...yay for them), it is time to see a RE. Depending on your RE, you might get more of a thorough workup with different hormone levels, but from what I've witnessed from my own experience and read from other IF bloggers...it is more of the same just a more aggressive version. Hey here is this clomid or femara...come back around day 10 for an ultrasound...okay time to trigger with a hcg shot...two days later come back for an IUI. When that doesn't work, the next step for most REs is injectables. Other REs jump straight from the clomid/femara protocol to IVF (my dr is one of these- but I twisted his arm to do injectables...something not right about going from a $7 medication to a 10,000 cycle). So there you sit with two choices, go home with no baby and no treatment or take the 10,000 dollar plunge for IVF. Half of the couples (if you go to a good clinic) exit the scene at this point with their little miracles...with the other half having to go back to the RE for a WTH Appt (what the heck is a nicer term than what most IF bloggers use). Sometimes REs are able to give answers on why the cycle didn't work but for the most part it is just a better luck next time appointment. Now the couple feels like they can't step back to a more affordable treatment from IVF, they must slap down another 10 grand if they want to try again. Does anyone else see a problem with this??!! Now before I go any further...please do not get me wrong! I am all for REs--in fact I love them. They are the ONLY ones in my opinion who should prescribe fertility meds because of proper monitoring and nurse accessibility with a few exceptions. I love infertility treatments--clomid, injectables, IVF. All of these are important medications and treatments, but they should be used once everything (and I mean everything!) is looked at for possible causes of the infertility. Do you know I had to ask for my surgery? There is no way to know now if I would have gotten pregnant without the surgery but at least I know now the cause of my infertility (or at least part of the cause).

This vent now brings me to why I'm writing this post. My IRL friend also is completely frustrated with this process, and she has decided to take charge of her treatment plan and her overall wellness. She went back to her GYN to ask her to run every possible test/bloodwork that she could. If you saw this friend's medical file, you would think that every test would have already been run...unfortunately that is not the case. Everything so far has come back normal (still pending some results) except for a major vitamin D deficiency. After finding this out, my friend googled vitamin d deficiency and infertility and was floored by what she found. I had not heard about this study, and I couldn't wait to get home to google after hearing about it from her. I started taking Vitamin D3 1,000iu daily probably around August of last year along with my prenatal, baby aspirin, and dha/omega 3 oils because my mom bought some for me. We are all super sensitive about MS because my Aunt has MS, and there is a strong genetic link in our family. My Aunt's doctor told her that her younger female relatives should be taking vitamin d3 so that is why my mom purchased the vitamins for me. What if my deficiency was part of the cause for my ovulation problems??!!

Here is the current research on Vitamin D and Infertility: (hopefully more will come soon)

A team from Yale studied infertile women and their Vitamin D levels. Not a single woman with ovulatory disturbance or PCOS had normal Vitamin D levels. They even found that those undergoing infertility treatments that had a higher level of Vitamin D were more likely to achieve pregnancy. These studies were small so more in-depth studies are needed, but in the meantime...why not add a little Vitamin D supplement? (of course talk to your dr first). You might need a prescription for a major dose of Vitamin D if you are severely deficient. This was the case for my friend.

I encourage all of you who are still waiting for your precious little one to research and to become an advocate for your own health. Remember that you know your body more than anyone else. Ask questions. Demand bloodwork. Pray for wisdom. It is absolutely no skin off a doctor's nose (no idea where this saying came from?) to run a few tests. Checking your vitamin levels and ALL of your hormone levels is a great place to start. And once the levels come back...don't just accept that they are "okay"...know what the levels or results are and what they mean. Give hugs and read Eileen's story for just one example of why we have to be our own advocate (which includes finding the right doctor!).

If you do this or plan to...please let me know what you found!

The Postpartum Appt of Two Infertiles

At my postpartum visit this week another new mom in the waiting room saw that I just had Henry and decided to strike up a conversation with me. We talked about feeding and sleeping schedules and all of the typical newborn mom small talk, but as we were talking I couldn't help but notice another woman sitting close by and her body language as she listened to our conversation. I cringed as the new mom talked about how "weird it was to be at the clinic without being pregnant" and many other comments that I knew would have hurt me if I had overheard them a year ago when I was at the gyn for my annual in the middle of fertility treatments. The woman nearby was flipping through a magazine and cringing every time I was cringing. I tried to tell myself that I was just imagining things, but when I saw her obviously make a face when the lab tech said, "see you next year." I knew she was struggling with infertility. I decided that if anyone said anything about Henry while I was waiting for bloodwork that I would say something so that she could be encouraged or she could talk to me if she wanted. The lab tech that I had for what felt like a million appointments during the pregnancy started ooing and aahing over Henry so I took the opportunity to say, "he really is a miracle." She started talking about how all babies are miracles once you learn what can go wrong and then I replied that every baby is for sure a miracle once you realize all that has to happen. Immediately my infertile friend spoke up (took the bait!)..."did you have to do fertility treatments to get pregnant?" I couldn't believe I was actually right about her! But it turns out I was only partially right. She did previously struggle with infertility, but she was there for a postpartum appointment. She had to do IVF to get pregnant with her first, but then had two surprise pregnancies so she has her hands full now with three under three! After she made sure to tell me to be careful (that advice went in one ear and out the other-no birth control for us!), we discussed infertility treatments like we were old friends. I know infertility is common and that I could have just made a lucky guess, but there was something about her body language. She heard things the way I heard them. She was sitting there with three babies at home, but infertility changed her just like it changed me. We can't sit there and hear "see you next year" and not think about the poor girl that is there for her yearly and praying that it is not another year before she makes it back to the clinic again. Our prayers were answered...we have our miracles, but going through infertility will forever change us.